A ‘Healing’ and Comforting Chicken Soup

Illness hit our house before the Thanksgiving holiday this year. After a few days of moaning and groaning, our eldest spiked a fever and tested positive for Influenza A. Let me just take a minute here to brag on this 13 year old man child – the second his throat started bothering him, he started […]

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Practicing Gratitude is my Caregiver Bliss  

It’s true what “they” say – that for some, it takes a life-altering experience to connect with our sense of gratitude. Being thankful is surface-level appreciation. That’s not what I’m talking about.   I’m talking about the feeling of fervent appreciation for your still living parents, after attending the funeral of a friend’s mom or […]

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How We Reduce Expectant Disappointment

When we solidify plans to do something fun, our very first impulse is to share that information with our kids. More than anything, we love to see the joyfulness they exude when something delights them. We want to share every bit of happiness with them – because we adore them and they are at their […]

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How we try to mitigate the emotional toll of childhood caregiving

To say that I have the best children in the entire world is an understatement. Because I do. I think most parents have moments of clarity where we recognize that our children are incredible human beings, becoming who they are meant to be right before our eyes. You know, between the sleepless nights of babyhood […]

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Accessibility inside the home – our journey toward barrier-free living

As a preface – the next few posts will detail some of the massive changes we’ve made to our home to help improve accessibility for my darling husband. Some of the posts will highlight the transformations (like this post) and others will offer suggestions and ideas on the questions to ask yourself – and the […]

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And, an entire year goes by in the blink of an eye

Too many things have happened since July 2020. Being a caregiver during a worldwide pandemic is hard, y’all. I’m so very thankful that things seem to be better, but I still live every day life on the edge of an anxiety attack. Shortly after our pandemic project was completed, and after much contemplation and discussion […]

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our pandemic summer project? Staying safe and building a lego wheelchair ramp

It’s been a good, long while. I’m happy to report that we’ve been (so far) successful in staying home and staying safe from COVID-19. We’ve made significant changes to our daily lives in order to help protect my darling. Our circle of visitors is limited to a literal handful of people who are equally diligent […]

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This all feels familiar – and it isn’t all bad

Caregivers will tell you that for us, living through this pandemic is oddly similar to the way we live our regular lives. Caregivers are acutely aware of how the world around us may impact the health, well being, and safety of the people for whom we love and provide care. For some of us, it […]

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A Global Pandemic, His Treatment, My Anxiety

I’m not sure about you, but I’ve been living in a constant state of blurriness over the last eight or nine weeks – I’ve completely lost count. It could be 12, but I’m going to probably keep saying eight or nine weeks for the next two or three weeks. That’s just where I’m at – […]

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