Real talk for caregivers. Celebrating successes. Solidarity in sorrow.
I saw a reel on Instagram recently that stopped me in my tracks. It showed a mother cuddling her child, with powerful music playing in the background. The words on the screen read: “You’re such an amazing advocate for your son…” Then, almost immediately, the reel cuts to a rapid-fire montage of things exploding and […]
Read MoreTonight was a big night for us. Our son plays trombone and is in his (Texas) high school marching band. And, our daughter had a birthday sleepover across town. Side Bar: I’ve been told that Americans implicitly understand that it’s a big deal to be in a Texas high school marching band, which is why […]
Read MoreWe’ve been home a week. And yes, I’m so thankful (so so thankful) hubby was well enough to be discharged. And yes, I much prefer sleeping in my bed to sleeping in a hospital ICU recliner. And yes, the commute, parking fees, and unlimited snacking have taken a toll on my wallet and waistline. But […]
Read MoreNobody knows my husband, his medical history, or his baseline (what he’s like on a “normal day”) better than me. So, when I have questions or comments about a clinical decision, or share feedback about his clinical status, my words are meaningful. While my commentary and participation is important, I also fully recognize that I […]
Read MoreIt’s weird being a mom. We’re supposed to know all the things, but these two hooligans teach me something new every day. Sometimes it’s about trombones and spittoons or ballet positions, sometimes it’s about calculus or Texas history, and some days it’s about how they need me to parent them. This last hospitalization was scary […]
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