Dear Clinician, Listen To The Caregiver

Nobody knows my husband, his medical history, or his baseline (what he’s like on a “normal day”) better than me. So, when I have questions or comments about a clinical decision, or share feedback about his clinical status, my words are meaningful. While my commentary and participation is important, I also fully recognize that I […]

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7 tips: Get the Most Out of the next Doctor’s Appointment

Doctor appointments. Many of them. Different specialists. Different offices. Sometimes in the same day or week. It comes with the territory of being a caregiver for someone with a chronic condition, but it isn’t any less overwhelming. There are two kinds of doctor visits. Doctor visits for discovery and doctor visits for follow up – […]

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