How we try to mitigate the emotional toll of childhood caregiving

To say that I have the best children in the entire world is an understatement. Because I do. I think most parents have moments of clarity where we recognize that our children are incredible human beings, becoming who they are meant to be right before our eyes. You know, between the sleepless nights of babyhood […]

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Accessibility inside the home – our journey toward barrier-free living

As a preface – the next few posts will detail some of the massive changes we’ve made to our home to help improve accessibility for my darling husband. Some of the posts will highlight the transformations (like this post) and others will offer suggestions and ideas on the questions to ask yourself – and the […]

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And, an entire year goes by in the blink of an eye

Too many things have happened since July 2020. Being a caregiver during a worldwide pandemic is hard, y’all. I’m so very thankful that things seem to be better, but I still live every day life on the edge of an anxiety attack. Shortly after our pandemic project was completed, and after much contemplation and discussion […]

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our pandemic summer project? Staying safe and building a lego wheelchair ramp

It’s been a good, long while. I’m happy to report that we’ve been (so far) successful in staying home and staying safe from COVID-19. We’ve made significant changes to our daily lives in order to help protect my darling. Our circle of visitors is limited to a literal handful of people who are equally diligent […]

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This all feels familiar – and it isn’t all bad

Caregivers will tell you that for us, living through this pandemic is oddly similar to the way we live our regular lives. Caregivers are acutely aware of how the world around us may impact the health, well being, and safety of the people for whom we love and provide care. For some of us, it […]

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A Global Pandemic, His Treatment, My Anxiety

I’m not sure about you, but I’ve been living in a constant state of blurriness over the last eight or nine weeks – I’ve completely lost count. It could be 12, but I’m going to probably keep saying eight or nine weeks for the next two or three weeks. That’s just where I’m at – […]

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A writer with no words

Nothing is more difficult than sitting and waiting. And yet, here we are. The whole lot of us. Our family has lived through two named hurricanes making landfall in our region and several other tropical storms, and most “Third Coasters” will tell you that the anxiety that builds up in advance of the storm is […]

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Surviving “That Awkward Moment”

If we’re friends, you’re no stranger to the fact that I am basically a walking, awkward moment. Also – word nerd moment – did the person who invented the word “awkward” knowingly spell the word in the most awkward way possible, AND made sure that the word awkward also sounds awkward? I was an awkward […]

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The Caregiver Struggle is Real – This is My Action Plan for 2020

At the end of 2019, I realized that I was about to turn 40. You’d think that I already knew that this milestone birthday was coming, but the realization hit me like a truck. I did an introspective evaluation and decided that some things in our life needed to change. Some things I have the […]

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