After In-Patient Stay – A Caregiver’s Task List

We’ve been home a week. And yes, I’m so thankful (so so thankful) hubby was well enough to be discharged. And yes, I much prefer sleeping in my bed to sleeping in a hospital ICU recliner. And yes, the commute, parking fees, and unlimited snacking have taken a toll on my wallet and waistline. But […]

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Dear Clinician, Listen To The Caregiver

Nobody knows my husband, his medical history, or his baseline (what he’s like on a “normal day”) better than me. So, when I have questions or comments about a clinical decision, or share feedback about his clinical status, my words are meaningful. While my commentary and participation is important, I also fully recognize that I […]

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Hospital Fluent: When the Hospital Starts Feeling Familiar

We’re on day (enter random number here because time moves quickly) of a hospital stay that won’t end for a few more days – and the hope is that my dear husband will be approved for rehab (fingers crossed), which means even more days in a care facility. I know that we’ve been here too […]

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How to make the next hospital stay fractionally better

Almost a year ago to the day, our lives were forever changed when a relapse of my husband’s Multiple Sclerosis (MS) snuck up on us over the course of a few months. We struggled to understand why everyday tasks seemed more difficult for him and why an uncharacteristic fatigue had washed over him and wouldn’t […]

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